On-Demand Activities

The role of the treatment team in supporting the family caregiver. What you will learn from this module: Learn the physical and emotional needs of the caregiver managing the patient at home. Understand the stress and challenges loved ones face while caregiving. Realize that oftentimes the oncologist’s focus is solely on the patient and not on the loved one who is caregiving. Understand that a caregiver for a patient might be someone outside of the family- like a close friend. This can be due to the lack of family members, dysfunctional family dynamics, or ages of family members (young and old).

Educating patients about treatment and survival of metastatic breast cancer is strongly linked to the cancer’s prognostic factors. What you will learn from this module: Learn the importance of educating patients about their specific metastatic breast cancer, focusing on its prognostic factors. Be able to teach a patient how their breast cancer treatments and prognosis may be different from other metastatic breast cancer patients they meet. Determine the optimal way to provide this education so it is understood by your patient.

Our time spent with patients and their families should not end with the transfer of the patient to hospice care. The patient may even resist such a transfer, feeling abandoned by their medical oncology team. Treatment for treatment’s sake is really bad medical care. Doing an effective job of preparing the patient and family for end of life needs to be the ultimate goal as treatments begin to no longer work. Due to having no contact with families after the patients have died results in losing teaching moments for the team that provided her breast cancer treatment. There is great value in incorporating the family’s needs and understanding into the treatment planning process from the beginning so they are better prepared at the end of her life and beyond.

How to maintain empathy and still deliver your best care possible when you are teetering on compassion fatigue and burnout. Our patients expect a lot from us. Honesty is the most important thing to them. They deserve to receive compassionate care and empathy. There can be a tendency to create a wall between us and our patients so that we can avoid the risk of experiencing compassion fatigue or, worse, burnout.

The Difference between Palliative Care and Hospice that result in Barriers to Care. What you will learn from this module:   Learn the assumptions and perceptions patients and their families have about the purpose of transitioning to hospice care. Understand the myths associated with agreeing to receive palliative care. Understand that palliative care stands alone and should be part of a patient’s care from the beginning when they are diagnosed with advanced cancer. Learn the barriers to implementing palliative care. Learn the value of palliative care when delivering patient centered care. Learn about how palliative care is also part of hospice care.

Of everything we do for our patients, the most important thing we can give them is honesty. What you will learn from this module: Learn that being honest with patients about their disease and its prognosis is very important for patients to know so they can plan out the remainder of their lives. Honesty doesn’t take away hope; it helps the patient move through phases of hope. 50% of the time, doctors do not disclose the patients’ actual prognosis. Patients do not understand or know the difference between palliative chemotherapy and active chemotherapy treatments, unless they are told.  Teaching patients to be optimistic for as long as it is realistic, while having an end of life plan in place should be our mantra. Avoidance of honesty may be linked to an oncologist’s feelings of believing they have failed the patient by not being able to save or sustain their life.

Advising Patients How To Communicate Information to Others about their Cancer Diagnosis and Treatment. What you will learn from this module: Learn about cancer patients feel isolated from their usual social community. Understand a cancer patients frustrations with lay people who insist on giving them advice how to manage their cancer. Learn about some metastatic breast cancer patients feeling angry when questioned by acquaintances if they “really have cancer.” Learn about the assumptions society makes regarding physical appearance of someone with cancer. Learn about the societal stigma associated with some cancers. Understand that barriers can exist within certain races regarding sharing cancer information with anyone, even family.

Evolving the conversation with your patients from “I’m sorry you are going to die” to “Let me help you experience a good and peaceful death”. This video will demonstrate how to clearly communicate the nine evidence-based elements to a good and peaceful death and how to structure that conversation with your patient. What you will learn from this module: No matter what someone’s eventual cause of death will be, including our own, people will benefit from learning the 9 elements and how to achieve them. The timing of when to have such a discussion with a patient with advanced cancer very much influences her willingness to listen to her oncology specialist/provider of care, and be ready to embark on fulfilling these 9 elements. There is benefit in being able to tell a patient that you, her doctor, has already completed these 9 elements for yourself, demonstrating that they are appropriate for everyone, no matter their current health status. By doing so, it doesn’t cause the patient to feel that they have to complete it because they are dying. Patients all have different personal psychosocial experiences over their lifetime and these experiences and relationship with family and others influences how they approach each of these elements and complete them. Fulfilling these 9 elements cannot be achieved in a few days. This is why it is important to have this discussion in advance of a patient literally approaching end of life. Patients may need as much as 2 months to complete all of these elements, each one taking a different length of time. Helping patients learn about the 9 elements and making it an assignment for them to complete is a way to give patients something they can control during a time that they feel they cannot control anything. Some answers to these 9 elements will be surprising to you, and will provide you greater insight into your patients’ psychosocial history and current needs. You as the patient’s provider of care should launch the discussion about the 9 elements however there is no expectation that you need to help the patient literally think about each one with you and provide the answers. It is also okay to delegate someone like a nurse navigator, psyche nurse from your oncology team, social worker, or therapist to review in detail with the patient each element. Each element carries its own weight in the eyes of the patient. Some elements may be considered by her to be the most important ones to her where another patient identifies totally different ones that she sees as major. Making sure however that legal and financial affairs are in order is critical for everyone, including ourselves, and should be prioritized as such.

Patient-centered care is a model of care that respects the patient’s experience, values, needs and preferences in the planning, coordination and delivery of care. A central component of this model is a therapeutic relationship between the patient and the team of healthcare professionals. The implementation of a patient-centered care model has been shown to contribute to improved outcomes for patients, better use of resources, decreased costs and increased satisfaction with care. This article provides an overview of the barriers to providing patient-centered care and identifies strategies that can be implemented to overcome them.